November 20th, 2013
A person becomes eligible to go on Hospice once it is determined one has six months or less to live. My choice is to die here at home.
I am now under 24 hour home care. Hospice is supplemented as an add on to provide me with in home emergency care and keep me comfortable right to the end. I have a big box of medications, morphine for pain and a bunch more for breathing, pooping & peeing and other functions. Acupuncture is my go to medication for comfort and pain relief. I have a myriad of life support equipment so I cannot stray too far from electricity.
Make no mistake I am fine with the end of life. You know I have lived a life filled with many adventures and shared experiences with all of you. The adventure continues and I am approaching it with the same conviction, spirit and passion as I had before ALS.
I am fortunate that I can die in my home in beautiful surroundings built by my daughter and son-in law, They are here 3 days a week to handle my legal affairs, pay my bills, do maintenance on the house and give me love and moral support. I can no longer swallow food and take all nourishment through a feeding tube.
My goal is to make it to April 12, 2014 for Ski to Defeat ALS on Mt. Hood. and finish my documentary.
All in all I am doing pretty well and visitors are always welcome. I can no longer speak and E mails are the only way to communicate.
Come over any time but email first: firstname.lastname@example.org
August 6th, 2013
Scott did it. Brian did it. Larry did it. You can too. (Paragliding for all PALS courtesy of Brad and Maren of Discover Paragliding) I’ll bring sign up sheet to Support group Wednesday and will get with Maren to arrange a day that will work for everyone. You can stay home and be miserable or come out and scare the crap out of yourself while discovering the exhilaration of survival. One of the most rewarding experiences of my life watching the guys take off. I know Brad and Maren feel the same way. This was not meant to be a fund raiser but Brad and Maren graciousley decided on their own to discount the flight to family and friends of PALS and donate 80% of money collected to Fred Noble Ski to Defeat ALS. Words are inadequate to express my appreciation, but thanks Brad and Maren for working your butts off and giving me the opportunity to help others.
Sunday, August 4 – What a great day. Discover Paragliding with Fred Noble and his ALS crew. Everyone got in the air thanks to Brad and Maron and there crew at discover paragliding. Smiles on every face. The best of days with some of my peeps. ~ Tracy Livingston
Come fly with us! We are going to arrange another PALS paragliding adventure during a week day in mid August. If you are remotely interested please confirm with Maren Ludwig email@example.com and let me know. All PALS fly for free. Family and Friends pay a discounted rate of 125.00 per person to offset expenses for ground support and misc. costs.
This will be fun event for everyone You don’t have to fly, but once you see a PALS big smile after landing I am sure you will want to fly.
Here are pics from the last adventure:
July 26th, 2013
I know Facebook and texting is the way most people correspond these days, but I am 76 years old and my cell phone has numbers on it. If I punch the right numbers it rings and someone on the other end answers. If my phone rings I answer (pretty simple).
I don’t know how to do Facebook and trying to get through all the useless information takes up what little time I have left. From now on, I would appreciate it if you have any messages for me that you email me to firstname.lastname@example.org. I guess if you want the world to know your business you can post on my Facebook page as well.
July 23rd, 2013
On the evening of July 19 I went into my nightly routine of coughing and choking. A few weeks ago I spent 9 days in ICU and learned how to deal with these episodes on my own and in my home. While this is not an easy thing to experience, it is a case of deal with it or die. On this particular night It was two hours of pure hell,coughing, choking and trying to clear my lungs. (about 90 minutes more than usual). At the time I was thinking I am not going to miss the First Annual Last Goodbye BBQ.
On the morning of the BBQ I was totally spent and felt comatose all morning, right up until the guests started arriving in the afternoon. As the day progressed I felt like I was injected with a miracle drug. The energy, smiles and laughter lasted into the late evening.
Thanks to LeAnn Fleming for the great photo
It was fantastic to see old friends and a few new friends. I am truly blessed and even though my glass is full, I have more glasses to fill and share with all of you.
Put your hand on a hot stove for a minute, and it seems like an hour. Sit with a pretty girl for an hour, and it seems like a minute. THAT’S relativity
Cough and choke for two hours and it seems like an eternity. Visit with good friends for a few hours and seems like minutes.
Melissa and I are already organizing the 2nd Annual Last Goodbye on July 19, 2014. Put it on your calendar and tell your friends not to plan any weddings, picnics, camping trips, or vacations. If the wind is blowing and you are a wind surfer you will need a note from your mom if you are not coming. Save the date, and see you soon!
June 9th, 2013
Dear Friends of Fredinator,
Fred had another heli-adventure this weekend as he was traveling to Reno to accept an award celebrating his fundraising efforts for ALS (we think…he was very quiet about the details. Unfortunately, it was not the good kind. This helicopter took him to Renown Hospital in Reno NV because of a bout of pneumonia and a fever of 104.
Tonight he is sedated, on a respirator, as the medical team works to get his fever down and allow the antibiotics to do their work. Friends, Fred is using all his might to overcome adversity tonight. He has been very modest about the difficulties he faces every day, all day because if this terrible disease, but the truth is that this time of his life is very painful and frustrating. Which makes his amazing positive attitude all the more remarkable.
While Fred is not a praying man, I know he’d appreciate it if you all took him into your hearts tonight. He needs as much positive energy as we can send him. We don’t know what to expect for his recovery in the next few days, but we do know he is “hard to kill,” as he’s fond of saying. In his mind, he’s taking on yet another wild slope, so lets send him some sweet dreams and healing energy.
June 5th, 2013
By Maren Ludwig, Discover Paragliding!
Today started out as an apparent ‘blow out’ with the strong morning winds. But, sometimes fortune favors the adventurous, and today was definitely one of those days.
After a morning trip to the beach had sent us back to the shop for a few hours we eventually headed back out, quite surprised to find decreasing winds. Excitedly, we got our group together and set up for flight.
We were all excited because we had a very special tandem on the schedule today. Our passenger, Fred, a former champion extreme athlete, is now suffering from ALS and is confined to a wheelchair. Having the opportunity to share another adventure with him was a genuine honor and a pleasure. It’s hard so say who among us was having the better time!
To see it come together made everyone’s day! Fred is looking forward to his next time out as much as we are!
After Fred’s flight, we had another enthusiastic passenger anxiously waiting. 3 1/2 year old Jackson, the son of our new student Jacob. He had watched his daddy fly the day before and was anxious to do the same!
Only a two tandem day, but one with perhaps our youngest in spirit passengers, and one of our youngest ever (in age) passengers.
Sometimes fortune smiles…
Thanks to all the folks who helped out to make it all happen!
Eli Anderson, Carlos Pena, Jimmy Vaughn, Amy L. Long, Jacob Anderson
May 6th, 2013
On April 18 The Ski to Defeat ALS event’s totals stood at $167,000, In the ensuing days that amount quickly rose to $169,000.
Not one to settle for exceeding our goal of 150,000 by $19,000 we discovered that we were close to $170,000 and with only 8 days left we decided to give away coffee mugs for a $20 donation or more.
$170,000 went over the top and with a $1000.00 commitment from my friends at Cascade Paragliding Club we could easily reach 171,000. Meanwhile, the mug campaign kept rolling along and it looked like $172,000 would be attainable If I donated a little over $400. This was not necessary and on the last day more donations came in and the final total is $172,237.
My sincere thank you to all participants, donors, volunteers, sponsors and particularly the ALS Association’s Aubrey McCauley, Meagan Lancaster and Anna Holmes who worked long hours late into the evenings to put on another epic event.
Mark your calendar for April 12, 2014 and lets get started on ways to exceed this years record.
~ The Fredinator
April 25th, 2013
With only 5 days left for Ski to Defeat ALS, we are now at $169,036.61!
I would personally like to round that off to $170,000.
If you can donate $20 or more before April 30th, I will send you an AWESOME mug! For others, if you donate just $5, I will match your $5 until we reach $170,000.
Remember, April 30th is the closing day, so get on it right away. You won’t miss that cup of Starbucks and you will be doing something incredibly nice for a lot of really good people. Myself included.
Just click here to donate online! Its easy!
April 22nd, 2013
Fred Noble Special Edition Commemorative Mug
Hey kids! Be the first on your block to get one of these unique special edition mugs. Everyone has one!
Between now and April 30, visit http://webor.alsa.org/goto/FredNoble2013 to donate $20 or more to my personal efforts for Team Fredinator in the 2013 Ski to Defeat ALS. If you do, you can take home one of these mugs! Spread the word and help me do more for ALS while I still can!
~ The Fredinator