If you have already joined please ignore some parts of this message. For you procrastinators, now is the time to take action and join me for the Ski to Defeat ALS fundraising event. Again this year, I am the event’s honorary chair.
In the past six weeks I have been in and out of the hospital four times. I have been hooked up to tubes, wires, breathing apparatuses and endured constant poking and prodding.
Having survived over a dozen life and death situations with far worse pain, I can tell you this is merely a routine part of my life. The only difference from prior experiences and ALS is that we all know with ALS, it’s not going to get better. I ponder that many times during those long sleepless nights and days of using all my energy trying to stay alive just one more day.
Feeding tube. Soup, salad, entree all in one 8 oz. can.
When I was in the hospital, the executive director of The ALS Association, Lance Christian, paid me a visit. My family and I all receive support from this organization, including support groups, one-on-one help to get all of my affairs in order and even support for friends and family who have been on the journey with me. Because of The ALS Association and their advocacy on a national level, I am able to receive awesome benefits from the Veterans Administration. This is not an easy journey, but The ALS Association has been there for me each step of the way. This is why it’s important to rally behind the Ski to Defeat ALS!
While the body grows weaker the mind, spirit and resolve gets stronger. I am still viable and can make a difference and that is why I am determined to help The ALS Association raise over $150,000.00 at Ski to Defeat ALS on April 13 at Mt. Hood Meadows.
Please consider joining my team or organizing one on your own. If that is not possible, a mere $5.00 donation from each of you will get the ball rolling. The cost to join the event is a deal, and each participant only has to raise $150 to participate. It’s incredibly easy and the staff at The ALS Association would love to help you hit that minimum.
To register, visit http://webor.alsa.org/goto/FredNoble2013 or call Meagan at 800.681.9851×2. Registration closes for this event on Friday, April 5, 2013.
For those who have already joined or made a donation you have my deepest appreciation. Together we can make a difference. Actually, we already are.