Fred Noble & Ski to Defeat ALS
Story Published: Apr 9, 2013 at 10:06 AM PDT
It’s been two years since his diagnosis with ALS (Lou Gehrig’s Disease), but Fred Noble isn’t letting the fatal diagnosis slow him down. He’s a been ziplining, heli-skiing, and rock climbing—all in the past year! But his biggest challenge is just ahead: Fred is challenging people to help him raise money for “Ski to Defeat ALS.” He’s trying to raise $50,000 before this weekend’s event and you can help by making a donation.
- Ski to Defeat ALS
- Saturday, April 13, 10am to 5pm
- Mt. Hood Meadows
Archive for the ‘Videos’ Category
Check out this awesome video of Fredinator skiing in April…
Article on Fred in AM Northwest — Published: Thursday, March 8, 2012. Read original article »
Longtime Portland resident and famed adventurer Fred Noble has cheated death many times in more than 50 years of dangerous and extreme backcountry skiing, paragliding, mountain climbing and wind surfing. At age 74, Noble now finds himself in a fight for his life after being diagnosed in December with ALS, the fatal neurodegenerative muscular disease best known as Lou Gehrig’s Disease.
Fred joined us today along with Lance Christian, the Executive Director of the ALS Association’s Oregon and SW Washington Chapter to tell us about their upcoming event Ski to Defeat ALS.
Ski to Defeat ALS is a team and individual skiing and snowboarding event to be hosted at Mt. Hood Meadows on Saturday, April 14, 2012. Participants engage in competitions for most dollars raised and for most vertical feet skied or ridden. For more information about the event, visit SkitoDefeatALS.org.
About ALS (Lou Gehrig’s Disease)
Amyotrophic Lateral Sclerosis is a progressive neurodegenerative disease that slowly robs a person of the ability to walk, speak, swallow and, eventually, breathe. With no known cause or cure, a person can expect to live typically 2 to 5 years from the time of diagnosis. ALS has no racial, ethnic or socioeconomic boundaries –– and in only 10 percent of cases there is a family history of ALS. Today, there are approximately 30,000 people in the US living with ALS and 5,600 people in the US are diagnosed every year. At any given time, there are an estimated 500 families living with ALS in Oregon and Southwest Washington.
Hi Everyone –
Please consider joining me at this special screening… November 20th at the Bagdad Theater at 7:00 pm. I will be hosting an info table on the Ski to Defeat ALS which will debut at Mt. Hood Meadows on Saturday, April 14, 2012.
Here’s the info:
The Movement is a movie highlighting five individuals from all walks of life. They have faced their respective disabilities and found the inspiration to overcome many obstacles. Both entertaining and inspiring, the show illustrates the surprising potentials available through adaptive sports to anyone with any form of disability. The personal stories of icons and everyday heroes of adaptive sports weaves a compelling narrative that is eye-opening and uplifting.
- Narrated by Robert Redford and Warren Miller
- Produced by Kurt Miller
- Supported locally by: Mt. Hood Meadows, Hillcrest Ski and Board Shop, and the Oregonian
Live appearances by: Kurt Miller and featured athlete, Jim Martinson.
Local HERO to appear at screening: Portland’s own intrepid adventurer, Fred Noble, will appear at the event. Star of multiple Warren Miller films, lifelong Mt. Hood Meadows skier and dedicated globetrotting sportsman, Fred now faces ALS with the same fire he has brought to his life. That’s exactly the spirit of The Movement.
Tickets available at www.ticketriver.com, Hillcrest Ski and Board Shop or the Bagdad Box Office. Tickets are $12 or VIP $50
Learn more about the movie at www.makeahero.org.
Here’s the movie trailer:
The AlS Association and I are seeking corporate sponsors for the Ski to Defeat AlS event at Mt. Hood Meadows. April 14, 2012. Our goal for sponsorship funds is $25,000.00 and through the event another $100,000.00
CMH Heli-Skiing gave $5000.00 and my goal is to match that amount by asking all my friends from around the world to donate a minimum of $25.00. Based on what we have recieved so far, I am sure we can reach the 5K very soon. I am now raising the bar a little higher and going for 10K.
My friend Silvie Kleiner in Switzerland donated over $1100.00 and just this morning Dave and Kelly Brown sent me the following message:
I met you briefly at the Windsurfing Association end of season party this last Aug 31 in Hood River and was impressed with your talk and goal to raise money for ALS. I did not know if you had a 501c3 organization or not, so my wife (Kelly) and I donated $250.00 to the local ALS chapter and made the donation in your name.
All the best and good luck reaching your goal!
Dave and Kelly Brown
At this time, the event website is in development. In the meantime, if you would like to make a donation towards my efforts, please make a check payable to The ALS Association, write Fred Noble – Ski to Defeat ALS in the memo, and send to The ALS Association, Attention: Ski to Defeat ALS, 700 NE Multnomah St, Suite 870, Portland, OR 97232.